A very busy couple of days, what with more oxygen being delivered, lots of work to do and moving into our weekend retreat.
There are still question marks around Stanley's feeding; we don't really know why he keeps de-saturating when he starts his feed. On Monday we'll be taking a field trip over the road to the main hospital, where he'll have a special x-ray done to trace some radioactive fluid as he swallows it. This should hopefully confirm that there is no liquid going to his lungs, which could potentially be causing these issues. The most likely answer is that it's just a coordination issue, but he'll not be going home before determining this either way. It's very frustrating; we'd happily take them both home right now - but, obviously it's best to find out exactly what is wrong in case anything needs to be done about it.
Willow, on the other hand, is pretty much ready to go home - so it looks like she will be released this coming week. Her only problem is that she needs a constant supply of oxygen, but that is all taken care of.
Rooming in is going really well - we actually now have time to properly relax, in the relative peace and quiet of Hotel NICU (give or take the constant grumbling from either or both of our children, and the yelps from the labour ward below.) It's so nice just being able to sit and read a paper for the first time in 18 weeks, and not worrying about our babies because they are right here beside us. We had a wonderfully delicious Chinese delivered too, courtesy of Top Wok.
Sleep is not really something we've experienced since we've moved in - these babies are quite demanding little people. But we have to get used to that anyway, so we need the practise.
So, another couple of nights rooming in to come, and hopefully we'll get some positive news regarding Stanley's insides on Monday. By then, we might know a little bit more about when we'll be coming home.
There are still question marks around Stanley's feeding; we don't really know why he keeps de-saturating when he starts his feed. On Monday we'll be taking a field trip over the road to the main hospital, where he'll have a special x-ray done to trace some radioactive fluid as he swallows it. This should hopefully confirm that there is no liquid going to his lungs, which could potentially be causing these issues. The most likely answer is that it's just a coordination issue, but he'll not be going home before determining this either way. It's very frustrating; we'd happily take them both home right now - but, obviously it's best to find out exactly what is wrong in case anything needs to be done about it.
Willow, on the other hand, is pretty much ready to go home - so it looks like she will be released this coming week. Her only problem is that she needs a constant supply of oxygen, but that is all taken care of.
Rooming in is going really well - we actually now have time to properly relax, in the relative peace and quiet of Hotel NICU (give or take the constant grumbling from either or both of our children, and the yelps from the labour ward below.) It's so nice just being able to sit and read a paper for the first time in 18 weeks, and not worrying about our babies because they are right here beside us. We had a wonderfully delicious Chinese delivered too, courtesy of Top Wok.
Sleep is not really something we've experienced since we've moved in - these babies are quite demanding little people. But we have to get used to that anyway, so we need the practise.
So, another couple of nights rooming in to come, and hopefully we'll get some positive news regarding Stanley's insides on Monday. By then, we might know a little bit more about when we'll be coming home.
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