Tuesday 29 March 2011

Monday 28th March

Another check up today, this time for Stanley only. He was booked in to see the cardiologist at Poole Hospital. Back in about November, during a routine heart scan, the docs found that Stanley had something called 'left ventricular hypertrophy'. This basically means that the muscle of the left ventricle is thicker than that on the right. It could be a hereditary problem, or just due to the heart working too hard.

Anyway, the good news is, there was definitely no sign of any hypertrophic left ventricles today. So another item to tick off the list.

The slightly less good news is that he still has a PDA. Not a personal digital assistant, nor indeed a public display of affection, but rather a patent ductus arteriosus. This is the open duct between the two main arteries; the same issue for which Willow needed scary surgery back in October. However, Stanley's is not causing him any problems, so at this point he doesn't need any treatment. It will hopefully disappear on its own, but if it doesn't, there is a keyhole procedure that can be done to close the duct. We'll find out about that in another nine months.

Back at home, the sat monitors are driving us around the bend. Willow's tends to go off when she rips the nasal prongs off her face, and Stanley's goes off because he wriggles around like crazy. We can't not have any monitors on when they're sleeping, because if Willow does pull out her prongs, we need to stick them back in her nose pretty quickly. If it wasn't for the beeps, we'd both easily have six hours sleep a night. It's particularly infuriating for Leela as she's had to hear them 24 hours a day for six weeks. Anyway, it won't be for too long hopefully....

In other news, our caffeine addiction has hit a new level. We both need at least twelve cups of coffee to get through the day, and there must always be a pot of coffee ready to brew for the 6am feed. It's one of my jobs, after the midnight sterilisation session, to prepare the morning hit.

The babies are getting on amazingly. Every time we wake up in the morning, they both smile and giggle at us for a few minutes before we feed them. I've never known anyone to be that happy in the morning, especially when starving hungry. But then I've never known any babies like Willow and Stanley before. No matter how little sleep we might have had, it's instantly forgotten when we see these two little faces beaming at us.

Sunday 27 March 2011

Sunday 27th March

Lovely weekend with the family; all went a bit too quick again!

We had breakfast on the beach on Saturday morning, and we had our first experience of feeding Willow and Stanley in public.

We've been getting a few comments while out and about.... the usual story.

"Ooooh, are they twins?"
"Yes"

"Ooooh, are they identical?"
"No"

"Ooooh, you've got your hands full, then."

On hearing them scream loudly: "Ooooh, nothing wrong with their lungs then."
"Yep, they're fine, apart from the chronic lung disease."

Thursday 24th March

Big day today. Not only did the babies have their six month birthday, they also had a trip to Boscombe to have their hearing checked out. They'd both had a hearing test back in NICU, but Willow failed in both ears, and Stanley failed in one ear. However, they're pretty unreliable in NICU because it's not really quiet enough to do an accurate test. The chances of having hearing problems increases substantially with premature babies, so this is another item on our worry list. On top of that, Willow once had a high level of the antibiotic gentamicin, of which one of the side effects is hearing loss. So, this has been an area of concern for us for the last six months .

We all went off to Boscombe in the lovely warm sunshine, and checked into the audiology department. We were in there for a good couple of hours, and both Willow and Stanley behaved impeccably while the audiologist performed some tests on each of them, lasting half an hour a piece.

Anyway, the upshot of it all was...... they both passed in both ears! We weren't amazingly surprised, as we were pretty sure they react to loud noises and to our voices anyway. But to find out for sure that it was all functioning properly was a major relief.

In other news, the kids were weighed today - Stanley's 15lbs 7oz, Willow is 13lbs 9oz. We're definitely still feeding them enough then.