Started the day in Southampton again today. Willow was with the same lovely nurse as yesterday. She’s one of our top five nurses. It’s quite stiff competition to make it into this prestigious list actually; I could possibly even make it a top ten. I suppose this is a good thing – there are so many nurses that we are more than happy with looking after our babies.
Willow had woken up a bit more overnight, but had not yet made great strides in improving her breathing skills.
The docs got an x-ray done to check there was nothing going on in the lungs which they might have missed and which might be causing additional problems.
The x-ray showed the lungs looking a bit fuzzy, but the docs reassured us that it all looked pretty standard. This was all to be expected; Willow had only just undergone major surgery after all.
We were more concerned that she might be in pain, and Leela was becoming leaky-eyed at this prospect. Our babies are so lucky to have her as their mum. She cares about them so much and I know for certain that there is absolutely no-one in the world who would make a better mother.
The plan with Willow is to take it slowly and get her nice and comfortable before weaning her ventilation. Her little body was still getting used to her new circulatory system, which no longer includes an open duct between her two main arteries.
We left Southampton feeling reasonably hopeful and made our way to Poole to see Willow’s brother.
Stanley was being a very good boy again. He came out of his cot for a two hour cuddle, with just nasal prongs for oxygen. Seeing him like that and being able to hold him makes us feel even more like actual parents. It almost feels too good to be true, even at this stage with such a long road ahead still.
Leela’s convinced that he might have a cleft palate. She mentioned it to the nurse and she’s made a note of it for the doctors to look at. I’m sure it’s alright and Leela just saw the dark roof of his mouth.
The last couple of nights we’ve been catching up on missed episodes of ‘An Idiot Abroad’. Although I still feel quite guilty doing anything that involves pleasure while our babies are stuck in intensive care, I think we need a bit of light relief sometimes or we’d be in an even worse emotional state.
Anyway, Karl Pilkington made us laugh so much we almost couldn’t breathe. Surely that can’t be a bad thing for the babies – although I am feeling guilty again just writing this. I just can’t wait for the times in the future when all four of us will be laughing together at something; I’m going to savour every moment.
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