Saturday 18 December 2010

Saturday 18th December

Today was very long and very tiring. It started off well; the morning report did not contain news of any bagging, which was a welcome surprise.

The drive to NICU in the snow was a bit hairy, but even a massive two inches of the white stuff wouldn't stop us seeing Willow and Stanley. Driving past the park gave us a glimpse of our happy future, where we'll all go out sledging and throw snowballs at Mummy; but we still have a long way to go before any of that can happen.

The children were both well behaved today, but we were having a frustratingly worrying time with Stanley's new monitor. It was going off constantly, his oxygen saturation levels swinging all over the place. We had a chat to the doc, who put our minds at rest with some straight talking, as usual. Stanley's lungs are still in pretty bad shape due to his chronic lung disease and all he's been through, so they're still not working properly. These fluctuations are nothing too much to worry about though, it just means that we have to sit through the most annoyingly loud beeping noise for a few hours a day. We should be used to annoyingly loud beeping noises after 85 days of them, but this one even more annoying, a bit louder and definitely beepier.

After a treacherous journey home (the majority of that treacherousness coming from our visit to Asda, not the increasingly icy roads), we'll do it all again tomorrow.

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