Wednesday 24 November 2010

Wednesday 24th November

Happy Birthday, children. Two months old today! Looking back at those 61 days, it's more like one very long day rolled into a blurry mess.

One of today's expected tests didn't happen; the head-scan won't be til tomorrow. So, another sleepless night tonight, worrying about what news that will bring. No news would be good. Just to know either way would be nice.

The other test, for ROP, was done first thing in the morning. And a good result! All four of our babies' eyes are still clear; no sign at all of this disease. One less thing to worry about - well, until the next check in a week's time.

Today was another one of those up-and-down days. Or more down-and-up, actually.

We were both feeling really negative about everything today. Not one thing in particular, just the accumulation of all the worries in our heads, especially those long-term questions which don't have any answers yet. Will our babies ever actually come home? Will they have brain damage? Will their eyesight be affected by all the oxygen they've been given? Are they going to be able to hear anything? Will Stanley's heart condition actually amount to anything? Will his PDA come back and need surgery? Will they have to go home on oxygen? Are they going to get any more infections? How long will it take for their lungs to fully recover?

After some therapeutic eye-leaking and a good chat on the way back to the hospital in the afternoon, things started looking up.

Willow and Stanley both came off their CPAP again and we had one each to cuddle for a few hours. This was the first time we'd really seen Willow being alert - her eyes were wide open. Seeing her like that really gives us hope that she's going to be alright. I had the same overwhelming feelings that I'd had a couple of weeks ago with Stanley - like I imagine the first time a normal parent would see their baby.

I'm really believing now that they're both going to come home. This year would be nice, please.

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